Emergancy Medical Information
Download Medical Alert booklet written by PWSA-USA– Click Here
Download GI Chart to be included with Medical Alert Booklet – Click Here
Download Prader Willi Syndrome Phone app via PWS-USA - Click here

Foundation for Prader Willi Research Canada: www.fpwr.ca
British Columbia Prader Willi Syndrome Association: www.bcpwsa.com
Ontario Prader Willi Syndrome Association: www.opwsa.com

Foundation for Prader WIlli Research USA: www.fpwr.org
Prader Willi Syndrome Association USA: www.pwsausa.org
International Prader-Willi Syndrome Organization: www.ipwso.org

Support for Training Staff
Interested in participating in a web-based training course for anyone working with or supporting someone with PWS?
Prader Willi Syndrome Network:

On-line support and resources
There are many online support groups. Facebook is an excellent tool in creating a way to connect to other families and organizations in the PWS community. You can search Facebook for " Prader Willi" or PWS to find these groups or you can contact PWSAA and we will assist you in connecting with these support groups.

  • Click here for a Roadmap to Aid You Along the PWS Journey (0-36 months of age).

  • Prader Willi Syndrome Guide





    Adult Transitions

    Disclosure Strategy:
  • http://www.ncwd-youth.info/411-on-disability-disclosure
  • http://publications.iowa.gov/4778/1/411_Disability_Disclosure_complete.pdf

    Assistive Technology
  • http://webcast.askjan.org/at1/ (it is possible to skip through slides- 8-26 is loaded with potential AT devices)

  • Though some of this is not applicable for us in Canada, some of it is valuable.
  • http://apse.org/
  • http://apse.org/resources/resources-for-employers-and-businesses/

  • Video Based instruction:
  • http://www.apse.org/wp-content/uploads/docs/APSEConxn-Jan11C.pdf
  • http://www.apse.org/wp-content/uploads/docs/apseconxnfeb11.pdf

  • Teaching in the Community:
  • http://www.hdc.lsuhsc.edu/ASI2011/Sessions/Wednesday/Parlin/Teaching%20in%20the%20Community_05_22_11_Handout.pdf

  • Creating Opportunities for Youth with Disabilities to Achieve Successful Futures:
  • http://www.ncset.org/topics/default.asp